|
Disability
Links
Advocacy and Consumer
Resources, General
United States
Arizona Protection &
Advocacy Organization - The Arizona Center for Disability Law
advocates for the legal rights of persons with disabilities to be free
from abuse, neglect and discrimination and to have access to education,
health care, jobs, and other services in order to maximize independence
and achieve equality. [ http://www.nau.edu/~ihd/acdl]
California
Protection & Advocacy Organization - PAI works in partnership
with people with disabilities - to protect, advocate for and advance
their human, legal and service rights. We strive toward a society that
values all people and supports their rights to dignity, freedom, choice
and quality of life. [ http://www.pai-ca.org]
The
Center for Assistive Technology (CAT) , at the University at
Buffalo,
conducts research, education and service to increase consumer knowledge
and device utility. The CAT involves persons with disabilities in four
related areas:
Research on assistive device use for education, employment or daily
living;
Education for academic and clinical professionals;
Assistive device service provision; and
Dissemination of information about CAT.
[ wings.buffalo.edu/academic/department/hrp/ot/cat/]
The
Center for Research on Women with Disabilities (CROWD) at the
Baylor
College of Medicine is a national research center for women with
disabilities, sponsored by National Institute on Disability and
Rehabilitation Research (NIDRR), Center of Disease Control and
Prevention (CDC), and National Institutes of Health (NIH). [ http://www.geocities.com/javasia2/it.html]
Council
for Disability Rights - Advancing rights and enhancing lives of
people with disabilities. [ http://www.disabilityrights.org]
DisabilityInfo.gov
- The gateway to the US federal government's disability-related
information and resources. [ http://www.disabilityinfo.gov/digov]
The Disability
Statistics Center produces and disseminates policy-relevant
statistical information on the demographics and status of people with
disabilities in American society. The Center's work focuses on how that
status is changing over time with regard to employment, access to
technology, health care, community-based services, and other aspects of
independent living and participation in society. [ http://dsc.ucsf.edu/main.php ]
The
Disability Rights Education and Defense Fund (DREDF) was
established on
October 1, 1979 in Berkeley, California. A nonprofit national law and
policy center run primarily by people with disabilities and parents of
children with disabilities, DREDF is dedicated to protecting and
advancing the civil and human rights of people with disabilities
through law and policy development, litigation, advocacy, technical
assistance, and the education and training of attorneys, advocates,
persons with disabilities and parents of children with disabilities. [ http://www.dredf.org]
DO-IT
(Disabilities, Opportunities, Internetworking & Technology)
hosts
programs as well as creates and distributes resources for pre-college
and college students with disabilities and for advocates, educators and
administrators. DO-IT serves to increase the successful participation
of individuals with disabilities in challenging academic programs and
careers such as those in science, engineering, mathematics and
technology.
[ http://www.dredf.org]
Equal
Access to Software and Information's (EASI) belief is that students
and
professionals with disabilities have the same right to access
information technology as everyone else.
[ http://www.rit.edu/~easi/]
Florida
Protection & Advocacy Organization/Client Assistance Program -
The Advocacy Center for Persons with Disabilities Inc., is a non-profit
organization providing protection and advocacy services in the State of
Florida. [ http://www.advocacycenter.org]
Michigan
Protection & Advocacy Organization/Client Assistance Program -
Michigan Protection and Advocacy Service, Inc. (MPAS) is a private,
non-profit organization designated by the Governor to protect and
promote the human and legal rights of people with disabilities in
Michigan through the provision of information and advocacy. [ http://www.mpas.org]
The
National Business and Disability Council (NBDC) is a
membership-based
business association providing a full range of services designed to
assist corporations in the successful integration of people with
disabilities into the work- and marketplace. [ http://www.business-disability.com]
The National
Council on Disability (NCD) is an independent federal agency making
recommendations to the President and Congress on disability policy and
representing all people with disabilities, regardless of severity, of
all ages and from diverse cultures. NCD is composed of 15 members
appointed by the President and confirmed by the U.S. Senate.
[ http://www.ncd.gov]
The National
Council on Independent Living is a national membership organization
representing the 43 million individuals with disabilities. NCIL is an
established voice of independent living centers as well as individuals
with disabilities. [ http://www.ncil.org]
The
National Empowerment Center (NEC) is a
consumer/survivor/ex-patient-run
organization working on issues of recovery, empowerment, hope and
healing for people who have been diagnosed with mental illness. Among
the many resources, NEC provides a live-person information and referral
line with information on shock treatment, schizophrenia, self-help
groups in local areas, legal services, meditation and self-help
techniques, and other resources.
[ http://www.power2u.org]
The National
Information Center for Children and Youth with Disabilities (NICHCY)
is
an information clearinghouse that provides free information on
disabilities and disability related issues. It specializes in
information for children and youth with disabilities from birth to 22
years of age.
[ http://www.nichcy.org]
The
National Library Service for the Blind and Physically Handicapped (NLS)
is a free national library program of Braille and recorded materials
for blind and physically disabled persons, administered by the Library
of Congress.
[ http://www.loc.gov/nls/]
The National
Organization on Disability (NOD) is a non-profit organization
promoting
the full and equal participation of America's 54 million men, women and
children with disabilities in all aspects of life. [ http://www.nod.org]
New
York Protection & Advocacy Organization/Client Assistance Program
- The Commission on Quality of Care for the Mentally Disabled serves
people with mental disabilities and their families by providing
independent oversight of the quality and cost effectiveness of services
provided by all mental hygiene programs in New York State. It
administers five federal formula grant programs through which it
provides legal and non-legal advocacy services to persons with
disabilities to assist them in obtaining the services and protections
of federal and state laws.
[ http://www.cqc.state.ny.us]
Ohio Protection & Advocacy
Organization - Ohio Legal Rights Service (OLRS) is an independent
state agency and the federally designated Protection and Advocacy (P
& A) agency for Ohio. The mission of this agency is to protect and
advocate the human, civil, and legal rights of people with
disabilities. OLRS' goal is to enable people with disabilities to
realize self-determination, equality of opportunity, and full
participation.
[ http://www.state.oh.us/olrs]
Oklahoma
Protection &
Advocacy Organization - the mission of the Oklahoma Disability Law
Center, Inc. is to protect, promote and expand the rights of people
with disabilities and mental illness.
[ http://home.flash.net/%7Eodlcokc/indextxt.html]
Parent
Advocacy Coalition for Educational Rights (PACER) Center, Inc.'s
mission is to improve and expand opportunities for children and young
adults with physical, mental, emotional and learning disabilities and
their families.
[ http://www.pacer.org]
The
Support Coalition International (SCI) is a nonprofit organization
that
supports and promotes organizations working for the rights of people
labeled with mental disabilities. SCI organizes non-violent protests to
challenge forced psychiatric human rights violations, creates
leadership training and community organizing, and organizes peer crisis
prevention workshops. SCI provides a variety of services for its
members including advocacy/referrals, member only support e-mail lists,
and others.
[ http://www.mindfreedom.org]
Through
the Looking Glass (TLG) is a non-profit, disability community based
organization that has pioneered research, training, and services for
families in which a child, parent or grandparent has a disability or
medical issue.
[ http://www.lookingglass.org]
The United
States International Council on Disabilities (USICD) is an active
member of Rehabilitation International (RI). Their combined mission is
to improve the quality of life of people with disabilities throughout
the world by way of education, rehabilitation, the prevention of
disability and the equalization of opportunities within society. [ http://www.usicd.org]
US
Census Bureau Disability Pages - Statistics on disability in
the US [ http://www.census.gov/hhes/www/disability/2003acs.html]
West
Virginia
Protection & Advocacy Organization/Client Assistance Program -
West Virginia Advocates, Inc. (WVA) provides advocacy to people with
disabilities. WVA services are supported by federal, state, and private
funds. WVA is the designated protection and advocacy agency for West
Virginians with disabilities under the federally mandated national
protection and advocacy system. WVA operates five distinct federal
protection and advocacy programs which address the diverse needs of
people with disabilities [http://www.wvadvocates.org]
Wisconsin
Coalition for Advocacy The Wisconsin Coalition for Advocacy (WCA)
is the designated protection and advocacy agency for people with
disabilities in Wisconsin. WCA engages in a variety of strategies
including, providing individual advocacy assistance for people with
disabilities and their families; training for consumers, their family
members, and a variety of professionals; and legislative/systems
advocacy and coalition efforts to make the human service and government
systems more responsive to the needs of people with disabilities. [http://www.w-c-a.org]
WinVisible
USA - Women with Visible and Invisible Disabilities (WVUSA) is a
grassroots network bringing together women with disabilities from many
different backgrounds, to campaign for economic, social and physical
autonomy, access to welfare, SSDI and other benefits, and equal choice
in employment, housing and other resources for independent living. [ http://www.globalwomenstrikes.net/NewStrike/NewContactUs.htm]
The
Women with Disabilities Resource Center is part of The National
Women's
Health Information Center (NWHIC), run by The Office of Women's Health
in the Department of Health and Human Services (DHHS). The new
resource center offers summaries about critical health issues for a
variety of disabilities, including physical, neurological, hearing,
speech and visual impairment. [ http://www.4woman.gov/wwd/index.htm]
Australia
Australia.Gov.au
- Gateway to Australian governmental information.
[ http://www.australia.gov.au/
]
Australian
Human Rights and Equal Opportunity Commission -
Disability
Rights policy and projects within the Australian Human Rights and Equal
Opportunity Commission. [ http://www.humanrights.gov.au/disability_rights/index.html]
Ethnic
Disabilities
Advocacy Center (AU) - The Ethnic Disability Advocacy Centre (EDAC)
was established in 1995 to advocate for and empower people with a
disability from non-English speaking backgrounds. [ http://www.edac.org.au]
- Queensland Advocacy Incorporated- An independent,
community-based systems advocacy and legal advocacy
organisation for people with disability in Queensland, Australia.
- [http://www.uq.net.au/%7Ezzqai/qai.htm]
Women With
Disabilities Australia - The aim of Women With Disabilities
Australia (WWDA) is to be a national voice for the needs and rights of
women with disabilities and a national force to improve the lives and
life chances of women with disabilities.
[ http://www.wwda.org.au/index.htm]
Canada
The
Canadian Centre on Disability Studies (CCDS) is a
consumer-directed,
university-affiliated center dedicated to research, education and
information dissemination on disability issues. Through their
activities CCDS promotes the full and equal participation of people
with disabilities in all aspects of society, emphasizing independent
and community living, human rights, and self-determination.
[ http://www.disabilitystudies.ca]
Canadian
Government - Website entry for Canadian government.
[ http://canada.gc.ca/main_e.html
]
Council of
Canadians With Disabilities (CCD) - CCD is a team of people with
disabilities, deeply committed to the principles of self-help and
consumer advocacy. [ http://www.ccdonline.ca]
The Society
for Disability Arts and Culture is a Canadian organization
that seeks
to
challenge issues of civil rights, acceptance, and social integration
through artistic mediums. They recently organized an international
festival exploring new forms of art expression including some seminars
and workshops to provide information related to disability and the arts.
[ http://www.s4dac.org]
Ireland
Center for
Independent Living (CIL) Center for Independent Living focuses on
the core issues of transport, housing, disability
equality and law reform, international affairs and their calling card
Personal Assistance program: the effective first step to Independent
Living. Over 25 CIL offices around Ireland run the Personal Assistance
Program. A Personal Assistant is someone who works for a person with a
significant disability to enable them to physically carry out all their
desired actions and duties either during the day or night. CIL offers a
comprehensive
informational and resource website. [ http://www.dublincil.org
]
COPE
Foundation is a non-profit service organization committed to
providing
service and advocacy to a broad spectrum of people with mental
handicaps. COPE works from the premise that people with mental handicap
have the same rights as other citizens and they should be enabled to
participate in the same patterns of living as other citizens.
[ http://www.cope-foundation.ie]
Ireland - Irish
government information online.
[ http://www.irlgov.ie/ ]
The Irish
Kidney Association (IKA) is a national, non-profit, consumer
organization providing support to kidney patients and their families.
Through its 23 branch offices, IKA works to improve the lives of
patients and their families by providing them with the information and
services they need to lead healthy and productive lives.
[ http://www.ika.ie.]
New Zealand
Govt.nz -
Government of New Zealand website.
[ http://www.govt.nz/ ]
New Zealand
Guidelines Group (NZ)
The
New Zealand Guidelines Group leads a movement towards the delivery of
high quality health and disability services throughout New Zealand.
Membersip is free.
[ http://www.nzgg.org.nz]
United Kingdom
The
British Council of Disabled People (BCODP) is an umbrella
organization
that represents some 136 disabled people's groups at the national
level. These groups, controlled by people with disability, are mostly
local coalitions working on local. BCODP is extremely proactive as the
national representative body for
organizations controlled by people with disabilities. [ http://www.bcodp.org.uk]
DeafBlind
Online UK - Software and resources for deaf-blind.
[ http://www.deafblindonline.co.uk/
]
Direct.Gov.uk
- Gateway to government agencies and information.
[ http://www.direct.gov.uk/Homepage/fs/en
]
Disabled
People's Direct Action Network (DAN) -
The Disabled People's Direct Action Network (DAN) is Britain's premier
civil rights group. DAN believes in Direct Action, which means
mobilising disabled people to demonstrate against injustice. The
organisation has taken the centre stage, in changing the way disabled
people in Britain are perceived by demanding civil rights, not charity
or pity.
[ http://ds.dial.pipex.com/telegraph/m_civrgt.htm]
DIAL UK
is a national organization with a network of 140 local disability
information and advice line services run by and for people with
disabilities. The DIAL network of disability advice centers provides
information to people with disabilities on a wide range of subjects. [ http://www.dialuk.org.uk]
Disabled Living Centres Council - Thus council leads a UK-wide
network of centres that introduce people to products and solutions,
which make life easier and safer, creating greater choice and control.
[ http://www.dlcc.org.uk/ ]
Disability
Wales/ Anabledd Cymru (UK)
National association of disability groups in Wales working for
the rights, inclusion, equality and support of all disabled people in
Wales. [ http://www.dwac.demon.co.uk]
DisabledInfo.co.uk
(UK) - "Disabled information for the disabled from the
disabled." [ http://www.disabledinfo.co.uk/]
Donaldson's
College - Scotland's National School for Deaf and speech &
language impaired young people.
[ http://www.donaldsons-coll.edin.sch.uk/
]
Jordanstown
Schools - Jordanstown Schools provide a
specialist education for children with an auditory and/or visual
impairment aged from 4-19 years of age. We are a co-educational and
non- denominational school. The pupils, who have a wide range of
abilities, come from across Northern Ireland and from other parts of
Ireland.
[ http://www.jordanstownschools.co.uk/indexdef.php#menu
]
Longwill
School for the Deaf -
Longwill School for the Deaf, previously known as Moseley Road
School for the Deaf, was first established in 1895. Longwill School
of the Deaf is a bilingual BSL/English school for children age 2 1/2 -
12 situated on the Bell Hill campus,
Northfield.
[ http://atschool.eduweb.co.uk/bday/school/locate.htm
]
National Centre for
Independent Living (UK)
A resource on independent living and Direct Payments for disabled
people and others working in the field.[ http://www.ncil.org.uk ]
National Deaf
Children's Society - The National Deaf Children’s Society is
dedicated to providing support, information and advice for deaf
children and young people, their families and professionals working
with them. [ http://www.ndcs.org.uk/
]
RADAR is a
national disability-led organization, which advocates for equal rights
for people with disabilities and works to promote best practices,
policies and laws that enables them to live independently in the
community. [ http://www.radar.org.uk]
TRAIN
(Teaching Resources And Information - UK clearinghouse for
information and resources related to deafness, speech and communication
disorders. [ http://www.schooltrain.info/index.htm
]
Vince's
Miscellany - An excellent gathering of UK disability resource
links. [http://www.geocities.com/vip_uc/disability.html]
International
and Global Resources
Disability
Web Guide - Disability Web Guide provides free detailed information
for people with disabilities across the world. We believe that society
disables people by not making goods and services accessible to all.
[http://www.disabilitywebguide.com/]
Landmine
Survivors Network (LSN) helps mine victims and their families
recover
through an integrated program of counseling, sports, social and
economic integration into their communities.
Landmine Survivors Network has a worldwide network to link landmine
survivors with the resources available to help them. [http://www.landminesurvivors.org]
Respect
the Disabled - "Respect the
Disabled" is a grassroots, non-profit, public service campaign
dedicated to promoting respect for the disabled in the community. We
invite everyone, both disabled and non-disabled, to help us in this
cause. [http://www.altrue.net/site/respectonline/]
TASH - TASH
is an international
association of people with disabilities, their family members, other
advocates, and professionals fighting for a society in which inclusion
of all people in all aspects of society is the norm. [ http://www.tash.org/ ]
Untangling
the Web - Directory of disability resources online. [http://www.icdi.wvu.edu/Others.htm]
Women
Pushing Forward, formally known as Whirlwind Women, is a project of
Whirlwind Wheelchair, Inc. (WWI), a US non-profit organization that
works internationally to develop grassroots wheelchair production, and
to remove barriers to wheelchair travel through social and political
change. [thepowerofmobility@sbcglobal.net]
World
Institute on Disability is an
international center for the study
and development of public policy on disability and independent living. [http://www.wid.org]
World
Rehabilitation Fund - The
mission of the World Rehabilitation Fund (WRF) is to assist developing
nations, especially those which have adverse effects from war and
natural disaster, with technical and professional training to aid in
the medical, psychosocial and economic rehabilitation of their people
with disabilities.
[http://www.worldrehabfund.org]
Specific
Conditions and Issues
Allergy
and Chemical Sensitivity
The
Human Ecology Action League, Inc. (HEAL) , founded in 1977, is a
nonprofit volunteer organization of people affected by or concerned
about environmental conditions that are hazardous to human health.
[http://members.aol.com/HEALNatnl]
Amputee
See also Mobility
Amputees
Federation of New Zealand (AFNZ) is a national organization
providing
support for amputees through regional societies throughout New Zealand.
[http://www.amputee.co.nz]
Landmine
Survivors Network (LSN) helps mine victims and their families
recover
through an integrated program of counseling, sports, social and
economic integration into their communities.
Landmine Survivors Network has a worldwide network to link landmine
survivors with the resources available to help them. [http://www.landminesurvivors.org]
Animal-Assisted
Therapy
Delta
Society -- Information about service dogs, therapy dogs, support
dogs, and the health benefits of the human-animal bond.[http://www.deltasociety.org]
Arthritis
See also Chronic
Pain and Mobility
Attention
Deficit
Disorder and
Learning Disabilities
About ADHD
-
About.com's information site on ADHD
ADD/ADHD
Online
Newsletter -- Online newsletter for parents and families of
children with ADD/ADHD
ADDA Website -
Attention
Deficit Disorder Association online
AdhdNews.com - Support site for
adults and families affected by ADD
The Arc
is a
national organization with 1,000 state and local chapters in 48 states
providing information to Americans having mental retardation and
related disabilities with services including employment, training,
education, independent living and other opportunities to reach their
greatest level of personal fulfillment and potential.
[http://www.thearc.org]
The British
Institute of Learning Disabilities (BILD) offers a range of
services to
support learning by professionals, care staff, service users and their
families.
[http://www.bild.org.uk]
The Galway
County Association for Mentally Handicapped Children (GCA) is a
non-profit organization providing comprehensive community based
services to adults and children with mental or learning disabilities.
With 49 branches throughout the county, GCA provides professionally
staffed educational and vocational programs.
[http://www.galwayca.ie]
The Learning
Disabilities Association of Ontario (LDAO) is a charitable
non-profit
organization dedicated to improving the lives of children, youth and
adults with learning disabilities. [http://www.ldao.on.ca]
The National
Center for Learning Disabilities, Inc. (NCLD) is a national,
nonprofit
organization committed to improving the lives of those affected by
learning disabilities. NCLD's mission is to promote awareness and
understanding of, and provide national leadership on behalf of,
children and adults with learning disabilities, so they may achieve
their potential and enjoy full participation in society. [http://www.ncld.org]
Recording for
the Blind and Dyslexic (RFBD ) is a national nonprofit organization
that
serves those unable to read standard print due to visual, perceptual or
other physical disabilities through a membership based lending library
system of alternative format media. [http://www.rfbd.org]
Benign
Essential Blepharospasm (BEB)
See also Blindness
and Vision Loss
The
Benign Essential Blepharospasm Canadian Research Foundation Inc.
(BEBCRF) - Their site contains Canadian BEB resources and links.
[http://www.blepharospasm.ca/index.shtml]
Benign
Essential Blepharospasm Research Foundation (BEBRF) -
This foundation maintains a drectory of BEB support groups in
Australia, Canada, England, New Zealand and the US. This directory is
located at http://www.blepharospasm.org/blephars.html
Blindness and Vision Loss
The
Association of Blind Citizens of New Zealand (ABCNZ) is a
voluntary,
national organization advocating on blindness related issues to
government, service providers and relevant arms of the private sector.
With branches throughout New Zealand, ABCNZ monitors services provided
to people with visual impairments and provides consultation on
improving those services. [http://www.abcnz.org.nz]
The Carroll
Center for the Blind is a private, non-profit agency, which
serves
persons of all ages who are blind or visually impaired. [http://www.carroll.org]
DeafBlind
Online UK - Software and resources for deaf-blind.
[ http://www.deafblindonline.co.uk/
]
The National
Federation of the Blind (NFB) is a consumer and advocacy
organization
with affiliates in all 50 states as well as Washington, DC and Puerto
Rico. The purpose of the NFB is two-fold: to help blind persons achieve
self-confidence and self-respect and to act as a vehicle for collective
self-expression by blind persons. [http://www.nfb.org]
The
National Information Clearinghouse on Children who are Deaf-Blind
coordinates issues and disseminates information related to children and
youth who are Deaf-Blind.
[http://www.tr.wou.edu/dblink]
Recording for
the Blind and Dyslexic (RFBD ) is a national nonprofit organization
that
serves those unable to read standard print due to visual, perceptual or
other physical disabilities through a membership based lending library
system of alternative format media. [http://www.rfbd.org]
The
World Blind Union (WBU) is the international voice of 180-million
blind
and visually impaired people. With member organizations in virtually
every country in the world, WBU works to promote equal opportunities
for blind and visually impaired people; to raise the status of blind
women, DeafBlind persons, blind people with multiple disabilities; and
to further international cooperation between organizations working for
the welfare of people who are blind and the prevention of blindness
throughout the world.
[http://www.worldblindunion.org]
Cardiac
and Coronary
Chronic
Pain
The
American Chronic Pain Association (ACPA) is a nonprofit
organization
with more than 400 chapters worldwide. It provides a support system for
people with chronic pain through education in pain management skills
and self-help group activities.
Deafness
and Hearing Loss
The Alexander Graham
Bell Association for the Deaf and Hard of Hearing is a nonprofit
membership organization that was established in 1890 to empower people
who are deaf or hard of hearing to function independently by promoting
universal rights and optimal opportunities to learn to use, maintain,
and improve all aspects of their verbal communications, including their
abilities to speak, speechread, use residual hearing, and process both
spoken and written language.
[ http://www.agbell.org ]
The American
Association of the Deaf-Blind (AADB) is a national consumer
organization of, by, and for deaf-blind Americans. "Deaf-blind" does
not necessarily mean totally deaf and totally blind. It is a broad term
that describes people who have varying degrees and types of both vision
and hearing loss together. Examples are: hard of hearing and visually
impaired, deaf and tunnel vision, hard of hearing and blind, totally
deaf and blind, and so forth.
[ http://www.aadb.org ]
American
School for the Deaf - Founded in 1817,
the American School for the
Deaf was the first permanent school for the deaf in the United States
and a nationally renowned leader in providing comprehensive
educational, programs and services for deaf and hard-of-hearing
students.
The American Tinnitus
Association is a 501(c)(3) non-profit organization dedicated to
promoting the relief, prevention, and the eventual cure of tinnitus for
the benefit of present and future generations.
[ http://www.ata.org ]
Association of Late
Deafened Adults (ALDA)
- ALDA was formed in Chicago, Illinois in 1987. Most of those that
gathered there were total strangers who had never met or talked to
another deafened person, yet they found themselves wonderfully
comfortable with one another. There was an unspoken feeling of
understanding and patience with each other's communication
difficulties. The marvelous sense of fellowship lasted and led to more
social gatherings and self help support groups, which swiftly evolved
into the Association of Late Deafened Adults (ALDA). Today, ALDA's
membership is international in scope. ALDA works collaboratively with
other organizations around the world serving the needs of late deafened
people and extends a welcome to everyone, late deafened or not, who
supports our goals.
[ http://www.alda.org ]
The Association of
Medical Professionals with Hearing Loss (AMPHL) supports medical
professionals with hearing loss.
[ http://www.amphl.org/ ]
The British
Deaf Association (BDA) is a national organization run by Deaf
people,
for Deaf people. The BDA represent England's Deaf community working on
equality and accessibility issues. The BDA advocates better access for
Deaf people to public information and services, discrimination issues
in the workplace, and the official recognition of British Sign
Language.
[http://www.bda.org.uk]
The
Centre for Deaf Studies (CDS) at Bristol University seeks to
provide a
focal point for deaf and hearing people in research, to offer training
facilities in the field of deafness and to develop and apply new
materials in a way that will prove beneficial to deaf people and those
around them.
[http://www.bris.ac.uk/deaf]
Cochlear Implant
Association, Inc. (CIAI) is a non-profit organization for cochlear
implant recipients, their families, professionals, and other
individuals interested in cochlear implants. CIAI provides support and
information to anyone who has a cochlear implant, has a child with an
implant, or is interested in information about implants. CIAI also
advocates for rights and services for people with hearing loss.
[ http://www.cici.org/ ]
DeafBlind
Online UK - Software and resources for deaf-blind.
[ http://www.deafblindonline.co.uk/
]
The Ear
Foundation - The Ear Foundation focuses on integrating persons who
are hearing impaired into mainstream society through public awareness
and medical education. The Foundation administers the Meniere's
Network, a national network of patient support groups that provides
people with the opportunity to share experiences and coping strategies.
[ http://www.earfoundation.org
]
Jordanstown
Schools (UK) - Jordanstown Schools provide a
specialist education for children with an auditory and/or visual
impairment aged from 4-19 years of age. We are a co-educational and
non- denominational school. The pupils, who have a wide range of
abilities, come from across Northern Ireland and from other parts of
Ireland.
[ http://www.jordanstownschools.co.uk/indexdef.php#menu
]
Longwill
School for the Deaf (UK) -
Longwill School for the Deaf, previously known as Moseley Road
School for the Deaf,
was first established in 1895. Longwill School of the Deaf is a
bilingual BSL/English school for children age 2 1/2 - 12 situated on
the Bell Hill campus,
Northfield.
[ http://atschool.eduweb.co.uk/bday/school/locate.htm
]
The National Association
of the Deaf focuses on safeguarding the accessibility and
civil rights of deaf and hard of hearing Americans in education,
employment, health care, and telecommunications.
[ http://www.nad.org ]
National Deaf
Children's Society (UK)
- The National Deaf Children’s Society is dedicated to providing
support, information and advice for deaf children and young people,
their families and professionals working with them. [ http://www.ndcs.org.uk/ ]
The
National Information Clearinghouse on Children who are Deaf-Blind
coordinates issues and disseminates information related to children and
youth who are Deaf-Blind.
[http://www.tr.wou.edu/dblink]
Oregon School for
the Deaf - Mission Statement: OSD is a community that fosters
lifelong learning, encouraging individuals to become self-fulfilled,
productive citizens.
The SayWhatClub
is an on-line group of over 200 late-deafened and hard of hearing and
other interested folks who provide support and encouragement to each
other through e-mail. Our goal is to provide a friendly, good-humored
place to exchange conversation, information, advice, deep thoughts,
humor, tall tales, and chit chat. It is our hope that members will get
to know each other and develop an on-line "community feeling."
[ http://www.saywhatclub.com ]
The
Scottish Association of the Deaf (SCoD) is the Scottish national
coordinating body for voluntary and statutory organizations that cater
for the wide range of needs of the Deaf. SCoD organizes national and
local forums, gives information and advice and publishes a national
directory and a newsletter. SCoD also provides a variety of links from
the Scottish parliament to local authorities. [http://www.scod.org.uk]
Self
Help for Hard of Hearing People, (SHHH) is a national, non-profit
consumer organization working to improve the quality of life for hard
of hearing people, their relatives and friends. SHHH opens avenues of
communication and greater awareness by providing information,
education, support and advocacy. [http://www.hearingloss.org]
Telecommunications
for the Deaf, Inc. (TDI) is a national advocacy organization
focusing its energies and resources to address equal access issues in
telecommunications and media for people who are deaf, hard-of-hearing,
late-deafened, or deaf-blind.
[ http://www.tdi-online.org/ ]
TRAIN
(Teaching Resources And Information - UK clearinghouse for
information and resources related to deafness, speech and communication
disorders. [ http://www.schooltrain.info/index.htm
]
The World
Federation of the Deaf (WFD) is an international, nongovernmental
organization of national associations of the Deaf. WFD was established
in 1951 and has member organizations in 120 countries. WFD works for
the human rights and equal opportunities of Deaf people worldwide. [http://www.wfdnews.org]
Developmental
Disabilities
See also Learning
Disabilities and Parenting
and Family
The Arc is a
national organization with 1,000 state and local chapters in 48 states
providing information to Americans having mental retardation and
related disabilities with services including employment, training,
education, independent living and other opportunities to reach their
greatest level of personal fulfillment and potential.
[http://www.thearc.org]
The Bazelon Center for Mental Health Law is a national legal
advocate for people with mental disabilities. Through precedent-setting
litigation and in the public policy arena, the Bazelon Center works to
advance and preserve the rights of people with mental illnesses and
developmental disabilities.
[ http://www.bazelon.org/ ]
Diabetes
Diabetes
New Zealand provides support for
people with diabetes in New Zealand and has chapters in each province.
[http://www.diabetes.org.nz]
Diabetes UK -
Diabetes
UK's mission is to improve the lives of people with diabetes in the
United Kingdom and work with colleagues and members throughout the UK
towards a future without diabetes. Diabetes UK provides extensive
information on diabetes such
as medication, diet, exercise, employment, driving, etc. [http://www.diabetes.org.uk]
Eating Disorders
See also Self-Help,
Substance
Abuse and Mental
Health
Emergency
Services
American
Drivers Alliance / ADA Auto Club - Affordable
emergency road
assistance for persons and families with disabilities. Includes
vehicle towing
and
accessable emergency
transportation for vehicle ocupants, as well as emergency help for
wheelchair and mobility equipment breakdowns - even if not automobile
related.
Epilepsy and Seizure
Disorders
Brainwave
- The Irish Epilepsy Association is a non-profit organization
working
to improve the quality of life for people with epilepsy in Ireland.
With regional offices through out the country, Brainwave offers
information and services to enable people with epilepsy achieve their
full potential.
[http://www.epilepsy.ie/]
Epilepsy
Association of Scotland (EAS) is an organization that deals with a
variety of issues pertaining to people with epilepsy. They provide an
array of resources including a national hotline (Scotland), information
over treatment and services, fact sheets, etc.
Fibromyalgia
and CFS
See also Chronic
Pain
Fibromyalgia
and CFS Basics - A website dedicated to disseminating current
reswearch and information about fibromyalgia to the public.
http://www.fmnetnews.com/pages/basics.html
Oregon Fibromyalgia
Foundation - Home page of the Oregon Fibromyalgia Foundation
http://www.myalgia.com/
Heart Conditions
See Cardiac
and Coronary
Conditions
Kidney Disorders
The National
Kidney Foundation, Inc. (NKF), a voluntary health organization, is
dedicated to preventing kidney and urinary tract diseases, improving
the health and well being of individuals and families affected by these
diseases, and increasing the availability of all organs for
transplantation.
[http://www.kidney.org]
Meniere's Disease
The Ear
Foundation - The Ear
Foundation focuses on integrating persons who are hearing impaired into
mainstream society through public awareness and medical education. The
Foundation administers the Meniere's Network, a national network of
patient support groups that provides people with the opportunity to
share experiences and coping strategies.
[ http://www.earfoundation.org
]
Meniere's
Disease Information Center
[http://www.menieresinfo.com/]
Menier's.org -
A clearinghouse for Meniere's information and support. [http://www.menieres.org]
Mental
Health
Autism
Society of America (ASA) has a mission to promote lifelong access
and
opportunity for all individuals within the autism spectrum and their
families for full inclusion in their communities. [http://www.autism-society.org]
The Bazelon Center
for Mental Health Law is a national legal advocate for people with
mental disabilities. Through precedent-setting litigation and in the
public policy arena, the Bazelon Center works to advance and preserve
the rights of people with mental illnesses and developmental
disabilities.
[ http://www.bazelon.org/ ]
Coping.org -
Free
online
manuals
for coping with various stressors
Encyclopedia
of Mental Disorders - The Encyclopedia of Mental Disorders contains
comprehensive medical
articles on mental disorders and conditions. Over 150 mental disorders
are organized alphabetically and each entry details the definition,
purpose, precautions, description, and external resources that can be
used to obtain additional information about every condition.
[ http://www.minddisorders.com/
]
The Galway
County Association for Mentally Handicapped Children (GCA) is a
non-profit organization providing comprehensive community based
services to adults and children with mental or learning disabilities.
With 49 branches throughout the county, GCA provides professionally
staffed educational and vocational programs.
[http://www.galwayca.ie]
Irish
Mental Patients' Educational and Representative Organisation (IMPERO)
aims to help reduce the isolation of mental patients and through
education, to improve treatment methods and conditions generally. They
publish 'Sequens,' which is a magazine. [http://www.iol.ie/~impero]
The
Madness
Group -
"...A decentralized electronic forum and
distribution device. People who experience mood swings, fear, voices
and visions can exchange strategies for changing existing public mental
health systems, and provide each other mutual support."
Mental Health
Workers Without Borders (MHWWB) is an international organization of
activist psychiatrists, psychologists, social workers, psychiatric
nurses, counselors, and other mental health workers. They primarily
deal with the needs of developing countries working on such issues as
mental health, human rights, treatment and psychosocial rehabilitation
for people labelled with severe mental illness. MHWWB also publishes a
manual, 'Coping with Disaster' which is available online in both
English/Spanish versions. The manual is for psychosocial interventions
in response to natural and man-made disasters. It is structured for
professionals, primary health care workers, teachers, etc. in countries
without much infrastructure or resources.
[http://www.mhwwb.org]
Mind,
a
mental health charity, works to advance the views, needs and ambitions
of people with mental distress. They promote inclusion by challenging
discrimination and seek to influence policy through campaigning and
education as well as advocating equal civil and legal rights. Mind
offers booklets, information and referral, and other resources to
mental health consumers and professionals. Mind also advises consumers
on their legal rights and has local offices throughout England and
Wales.
Info Line: (44) 208-457-660-163 [http://www.mind.org.uk]
National
Empowerment Center, Inc. - The mission of the National Empowerment
Center Inc. is to carry a
message of recovery, empowerment, hope and healing to people who have
been labeled with mental illness. We carry that message with authority
because we are a consumer/survivor/expatient-run organization and each
of us is living a personal journey of recovery and empowerment.
[ http://www.power2u.org/index.html
]
Metabolic Disorders
See also Diabetes
The
National Coalition for PKU and Allied Disorders is not for profit
organization comprised of individuals, metabolic support groups and
professionals directly involved with genetically inherited diseases
requiring a low protein diet.
[http://www.pku-allieddisorders.org]
Parenting and
Family
Disabled
Parents Network provides support and information on all aspects of
pregnancy and parenting for people with disabilities. It also runs
ParentAbility, parent-to-parent network for information and support for
parents with disabilities and parents with learning difficulties.
[http://www.directions-plus.org.uk/az/parentability.html]
The
National Childbirth Trust (NCT) offers support in pregnancy,
childbirth
and early parenthood. NCT aims to give every parent the chance to make
informed choices and strive to make sure that all their services,
activities and membership are fully accessible to everyone, including
people with disabilities. It offers services and information from
planning a pregnancy on through birthing and child development. NCT
operates branches throughout the United Kingdom. [ http://www.nctpregnancyandbabycare.com]
Parent
Advocacy Coalition for Educational Rights (PACER) Center, Inc.'s
mission is to improve and expand opportunities for children and young
adults with physical, mental, emotional and learning disabilities and
their families.
[http://www.pacer.org]
Self Help
Self
Help for Hard of Hearing People, (SHHH) is a national, non-profit
consumer organization working to improve the quality of life for hard
of hearing people, their relatives and friends. SHHH opens avenues of
communication and greater awareness by providing information,
education, support and advocacy. [http://www.hearingloss.org]
SelfHelpNetwork.com
- Comprehensive
resources and community of all self help topics. Contains reviews of
over 350 self help books and tape programs.[http://www.selfhelpnetwork.com/]
Service
Dogs
Delta
Society -- Information about service dogs, therapy dogs, support
dogs, and the health benefits of the human-animal bond.
[http://www.deltasociety.org/default.htm]
IAADP -- (
International
Association of Assistance Dog Partners ) A non-profit, cross-disability
organization representing people partnered with guide, hearing and
service dogs. [http://www.iaadp.org/]
Spinal Disorders
The
Association for Spina Bifida and Hydrocephalus (ASBAH) is comprised
of
more than 60 local associations providing advice and services to people
with spina bifida and hydrocephalus, their families and the
professionals who serve them. [http://www.asbah.org]
The
National Scoliosis Foundation (NSF) is a patient-led not-for-profit
organization dedicated to helping children, parents, adults and
health-care providers to understand scoliosis (a sideways curvature of
the spine) and other spinal deformities. [http://www.scoliosis.org]
Smoking
Cessation
See also Substance
Abuse
Substance Abuse
See also Smoking
Cessation
Wellness
See also Self-Help
and Smoking
Cessation
Wheelchair
and Mobility
American
Drivers Alliance / ADA Auto Club - Affordable
emergency road
assistance for persons and families with disabilities. Includes
vehicle towing
and
accessable emergency
transportation for vehicle ocupants, as well as emergency help for
wheelchair and mobility equipment breakdowns - even if not automobile
related. Membership is open to all.
[ http://www.americandriversalliance.com/index.html
]
The
Disability Drivers Association (DAA) is a self help organization
for
and by people with disabilities. The DAA can provide information on
motoring in Britain. The DDA promotes independence through enhanced
mobility, provides an information service, campaigns to advance the
cause of disabled people, negotiates price concessions to make mobility
more affordable and produces a quarterly magazine called the Magic
Carpet. [http://www.dda.org.uk]
The
Disabled Drivers Association of Ireland provides information,
training
and exchange services for people with physical disabilities. It is an
organization of disabled people working for disabled people, promoting
independence and equal opportunity through mobility and providing
information, advice and support service to members.
[http://www.iol.ie/~ability/ddai.htm]
The Irish
Wheelchair Association (IWA) is a voluntary association that
delivers
direct services to people with physical disabilities and influences
change by representing the issues, which prevent people with
disabilities from participating as full and equal citizens in society.
IWA also publishes Spokeout a magazine of news, views and activities
for children and adult members. [http://www.iwa.ie]
Mobility
Information Service (MIS) is a non profit organization that
provides
information to their clients who are drivers over the ages of 16 years
old with physical disabilities affecting mobility.
They may also
be able to provide further information for traveling in the UK through
their 16 different centers located throughout the UK and Ireland.
The Mobility Information Service is mostly run by volunteers, the
majority of whom are themselves disabled and who have a desire to help
others overcome their own mobility problems.
[http://www.mis.org.uk/]
Mobility
International USA ( MIUSA) works to promote leadership and
inclusion
among people with disabilities around the world through international
exchange opportunities, consultation, resources and information. MIUSA
offers exchanges, publications, videos, and workshops in order to meet
these goals.
[http://www.miusa.org]
The
National Center on Accessibility (NCA) is a nonprofit organization
working to ensure full accessibility for people with disabilities to
public parks, recreation and tourism.
[http://www.ncaonline.org]
The Society
for Accessible Travel and Hospitality (SATH) is a US nonprofit
educational organization that serves as a central clearinghouse for the
development and exchange of information on travel facilities, data and
literature for people with disabilities. SATH's mission is to promote
awareness, respect and accessibility for disabled and mature travelers
and employment for persons with disabilities in the tourism industry. [http://www.sath.org]
|
|
|
![Life at the Creek Cottage [LOGO]](http://www.creekcottage.org/images/life_at_blk14pt.gif)