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Mutual Assistance







"Why I Chose Mutual Assistance" : Ric's Story

When I first became disabled in 1992, I was fortunate enough to be living in Berkeley California, the birthplace of the Independent Living movement.  Through contact with the Berkeley Center for Independent Living I learned about the concept of self-directed support services.  Since then I've been heavily active in the disability rights movement and have especially been involved in efforts to reform the long term care system in the United States. 

One of the concepts that we as disabled people support is the concept of mutual assistance.  Since we as people with disabilities understand our needs and desires far better than bureaucrats, social workers, etc. It is we who must provide of voice in shaping policies and the actual delivery of services.  Hence the term " NOTHING ABOUT US WITHOUT US!"  So when Keri proposed our current living arrangement I was greatly interested.

I had known Keri for over 23 years.  I knew that as good friends we would be very comfortable with each other and that this would enhance our ability to work together and be supportive in a respectful and positive manner.  However, I also knew that this meant we had to commit to increasing our knowledge base about each other's disabilities.  

The road we have now taken is not without potholes.  But I am grateful for the chance to actually practice what we preach.  As we continue to work on this project I hope we can share with you both our victories and our setbacks.  Most of all I hope that we can show that as people with disabilities, we can live our lives with true dignity and independence.  And create a service model that is truly self- directed.

Ric Burger
April 8, 2005


An Example of a Mutual Assistance Agreement


Contract Between "John Doe" and "Jane Gray"


John Doe will provide for Jane Gray the services of an Attention Deficit Disorder coach. The services of an Attention Deficit Disorder coach include, but are not limited to:

  • Assisting in identifying organizational goals for independent daily living activities
  • Assisting in creating strategies for implementing and acheiving goals
  • Monitoring progress and completion of these goals
  • Co-attending (as requested by Jane) classes, workshops, and planning sessions pertaining to:
    • Dog training, dog handler training, or any other training related to Jane's service dog
    • Nutrition, wellness, or patient self-care classes
  • Providing prompts and reminders for essential activities such as medical appointments, taking medications, paying bills, and other important activities of daily living

John Doe will meet at least once a week with Jane Gray to discuss any issues or problems related to services, and to review details and planning.

John Doe will meet, subscribe to and abide by all requirements for occupancy set forth in any lease or property rental agreement maintained by Jane Gray, and shall not by his actions or inaction, jeopardize Jane Gray's tenancy.

In return, Jane Gray will provide to John Doe

  • Living quarters at her residence, including:
    • Private sleeping quarters
    • Shared and equal access to laundry, cooking, bathing and sanitary facilities ("Access" to include any adaptive modifications necessary for him to make use of these facilities)
    • Separate storage area(s) for food
  • Insurance coverage for the replacement of his personal possessions in the event of theft or loss
  • Transportation and travel accomodations required for the performance of his duties

John Doe is responsible for the purchasing and preparation of his own food, and will store his food separately.

This contract may be terminated by either party by giving thirty days advanced notice of intent to terminate, or when either party becomes unable to fulfill their obligations due to physical or other medical condition.

Signed: John Doe  Date: 01/01/2010

Signed: Jane Gray  Date: 01/01/2010



A Sample Agenda and Brief Description of A Creek Cottage House Meeting



Checking in: This is a forum briefly let each other know, how we are doing in the "here and now". ( Examples: "I didn't get much sleep last night. I feel grouchy today" or "I feel really optimistic right now." ) There is no cross-talk and no discussion, and we avoid letting it become a "storytelling" session. Making a clear and concise "feeling statement" also seems to help both of us make ready to focus on the rest of the agenda.

"Pokes and Strokes": Each of us shares a brief "poke" (comment of dissatisfaction) or "stroke" (comment of praise). (Examples: "Strokes to Ric for washing the extra dishes last night!" or "Pokes to Keri for skipping the dishes on Thursday... or even "Pokes to the  spiders on the back porch for all those cobwebs I had to clean!".) We continue this until each person feels finished expessing themselves. The purpose of this time is just to listen to each other, not to debate or discuss any issues.

Medication Management: Each of us shares briefly how we are doing with our personal medication regimen. We take note of important details.  Refills needed? New medications? Changes in dosages? Special precautions or instructions? Problems with the pharmacy? Noticing possible side effects? This is the time to make each other aware of these things, and plan for mutual support as needed.

Meal Management: Each of us shares briefly how they are doing with nutrition and dietary regimens. Any requests for certain recipes or treats? Who is using the kitchen, and when?  (Originally, this also included mutual assistance with menu planning, but we eventually decided to set aside another time for those details.)

Health Status: Each of us may share more detailed information about their current general and specific health if desired. This can include any issues related to mental or physical health and well-being, such as recent changes in the way we feel, concerns, improvements noticed, etc.  We listen, take note, and may ask questions for clarification. This is the time to ask for specific types of support from each other. This could also be a time to ask each other for feedback about health-related issues: "How am I doing?", "Have you noticed any changes... (in my health, mood, etc.)?"

Schedule Review: Time to synchronize calendars, planners, alarm clocks, timers, and PDA's. Exchange any information necessary to coordinate transportation, house duty assignments, classes, appointments, etc. Work out schedule conflicts.

"K9 Issues":  This is the time we use to track the health, welfare and training issues for each of our dogs. It includes a recap of homework assignments from any handler training and obedience classes, and a feedback session about progress. (This is also the forum for bringing up any  "issues" we may have with our hairy housemates, and deciding on  management strategies.)


Housework: This is the time for checking and organizing the household task card file. We use a card file system which makes dividing and assigning household tasks go very smoothly. This system  allows both of us to easily adjust for day-to-day "ups and downs" in our stamina and abilities, without falling behind and getting discouraged. We discovered that the cards are also a very valuable tool for making efficient use of helpers. With cards in hand, delegating tasks to other people becomes very focused and very simple. 

Maintenence: Are any home repairs needed? Is there any new maintenence that needs to be done on the house or grounds? What needs to be done? Who will do it? What is the status of any old repairs or maintenance? Were they completed, or do they need follow-up? 

Assistance Issues:  At every house meeting, each of us asks and answers some basic questions: Am I able to attend to activities of daily living? Was I able to perform the household tasks agreed upon at the last meeting?  If not, what were the barriers? What assistance might be needed for me to perform these activities and tasks?  Does something in the physical set-up of the house need to be changed? Do I need adaptive equipment to perform the task(s)? Can I trade this task with someone else? Is this a task that should be delegated to an outside caregiver or hired help? Overall, am I satisfied with my level of functioning right now? If not, what do I want to work on?

Budget and purchasing:  As independent and separate people, Ric and I do not have
shared expenses. As my ADD coach, part of Ric's job is to assist me with creating and following long-term spending plans, and with tracking and documenting expenses. This is the time we use for me to review my operating budget, make adjustments, decide on what  purchases to make, and when to make the purchases .






 




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